My name is Rhys, a first time dad blogging about my adventures and experiences of being a parent. [email protected]

Improvements made to kidney care in Wales

A new all-Wales digital system is helping people with chronic kidney disease manage their care through technology and cutting hospital visits.

Developed by the renal unit at Swansea Bay University Health Board and receiving £1.874million in funding from Welsh Government’s Transformational Fund, the tools have transformed service delivery, enabling those living with the disease to access their blood results and dosing instructions through a patient portal.

People with chronic kidney disease often face a lifetime of health challenges; most require specialist medicines, and some require dialysis or a transplant. The digital platform allows those living with the disease to manage and adjust their treatment from their personal devices and receive high quality care from any location.

The all Wales system brings together all kidney care records together allowing the treating clinician and other clinical departments to access blood results and medical and nursing notes remotely from wherever someone is receiving treatment. This allows renal services to offer the same high quality of care across Wales and for information to be shared across settings to better inform decisions about other health conditions.

Featuring 346 nurses and 117 digital prescribers the digital tool is available to renal units across Wales. With over 45,000 medications administered every month the tool removes the geographical challenges to accessing services and treatments by allowing treatments to be prescribed from any location and be instantly available wherever the patient is receiving care.

A digital hub has also been produced to provide education material to help people understand and actively manage their condition. For people needing lifelong dialysis, education and training videos, patient stories and documentaries are available to demonstrate the benefits of home dialysis and how it can improve quality of life by giving patients more freedom by reducing hospital visits and allowing them to continue working.

A new virtual reality app allows people on dialysis to see how the equipment can fit within the home and the impact it will have on their day to day lives.

Visiting the Kidney Care Collaborative at Morriston Hospital, Health Minister Eluned Morgan said:

“Chronic conditions have a tremendous impact on someone’s wellbeing and quality of life. It is fantastic that our Transformation Fund has supported the Collaborative Kidney Care team to create an all Wales Digital Platform to deliver care and give people the confidence and the knowledge to self-manage their own condition.

“By using innovative technology health care providers can treat more people, access information anywhere and use virtual surveillance and clinical dashboards, helping for safer, quicker treatment and prevents missed doses. We need to transform health care in Wales and technological innovations like this which help deliver care closer to home and reduce pressure on our hospitals which are central to our vision.”

Professor Chris Brown, consultant pharmacist for Swansea Bay University Health Board and the Welsh Renal Clinical Network said:

“This modernisation has been more than implementing new technology. Going digital has required us to build a culture for innovation and doing things differently, taking the staff and the people we care for along our journey and placing them at the heart of our service design. Our collaborative approach to kidney care has ensured what works for one part of Wales can work for all of Wales, and this has raised the ambition for how modern kidney care should look”.